Category: Lately

  • Day Six Hundred and Ninety-Six

    Since May 22, 2023 until today, my medical expenses amount to:

    $1,147,452.74

    That’s not including the annual fees my parents have covered out-of-pocket so I can see the family doctor at his concierge practice. It doesn’t include the fees to obtain my medical cannabis card, or the cannabis itself. It doesn’t include the products I’ve purchased over-the-counter, like ice packs, acetaminophen, Aquaphor, saline, magnesium glycinate, glucosamine chondroitin with MSM, Colace and Miralax . . . and Imodium!

    One million one hundred and forty-seven thousand four hundred and fifty-two dollars and seventy-four cents.

  • Day Five Hundred and Forty-Five

    I had my twenty-fifth infusion treatment at MSK today. It has not gotten easier, but I have gotten used to it.I’ve gotten used to the route there and back—Route 35 to 684 has got to be one of the most monotonous byways in the region just north of New York City.

    I’ve gotten used to never knowing exactly what to expect (e.g. how long will we wait? Who’ll be my infusion nurse? Will I feel hungry or snackish or have no appetite at all? Will they surprise me at the very last moment with an extra blood sample or a urine sample kit . . . or worse, the other kind of kit?)

    I’ve gotten used to politely declining the offer of a warm blanket before I’ve even taken my seat in “The Chair.” Those treatment rooms are hotter and stuffier than the back seat of a school bus that’s been waiting in the sun for thirty minutes for school to let out.

    I’ve gotten used to not being able to do much during an infusion. I expected to pass the time playing Banagrams or Jotto, writing postcards, or even painting my nails (the infusion rooms are singles occupancy.) The tray table is too small for games. One hand is strung up by my IV, and that’s if it’s not on ice. And the heavy dose of Benadryl I get before they push the real stuff makes me a pretty sloppy competitor, writer, and painter.

    I’ve even gotten used to the fact that no matter what exciting news you get—Your CA-125 is down! Your WBC is up! You look so much healthier than the last time I saw you!—the news is still kinda lousy because it’s about the cancer that you still have.

    I haven’t gotten used to people who’ve miscalculated their two-inch voices or use the clicky keyboard on their mobile device or receive 242 notifications within the span of an hour or play mobile games with boingy-boingy or—this is truly unbelievable—shooter sound effects.

  • Dear Dixie

    1468800_843481833585_1243191480_nOne year since you, Dix. Dixie Chick of Shadowland White. Dixalicious. Chunk with the Junk in Her Trunk. My Snuggleupagus.

    I still miss you every every every day, especially when I’m walking home after work. I used to get home and launch into a frustrated rant about work or slow walkers or silent filibusters. You’d sit at my feet, shifting back and forth, if necessary, as I paced, twitching the very tip of your tail hopefully, like you always did. When you got impatient, you’d put your paw up on my knee, like, “excuse me, down here, hi, hi, hello!” I’d finally get the message, and I’d kneel down to greet you and instantly forget all my troubles.

    When I scratched your ears, rubbed your belly, or snuggled your scruff, your comfort and happiness comforted me and made me happy. I believe you knew that, and that you felt the same way.

    I loved knowing—usually—what you needed from me, and that I could provide it. And you could always give back what I needed most from you. Could you read my mind and know what I was feeling? I’m not entirely sure about that. I think it just worked out that what was best for you was best for me; that’s enough for me to know that our bond was special—honest, generous, affectionate, and loyal.IMG_4797

    I’ve faced some tough times in the last year. When I’m sad, sick, or tired, I miss you terribly. When I can’t sleep or concentrate, I remember your thunderous snoring and the insistent, reassuring press of your forehead, chin, or rump against me. When I feel weak or hopeless, I remember your steady gait and your patient gaze. But I also miss you when I’m happiest, because feeling safe, peaceful, or loved always reminds me of you.

    A few fantastic things have come my way this year, too—four of them are other Shadowland labs, including your granddaughter, Birdie Balderdash!

    Ida Run-A-Muck & Birdie “The Bird” Balderdash of Shadowland, November 2015

    Your wonderful pawrents Karen and Craig have sent Birdie, along with young ladies named Ida, Sally, and Shirley, to visit me, and Mom and Dad, for sleepover weekends when we’ve needed some labrador love in the house.

    12742131_10100210970829665_4083055946047667566_nSisters (yes, littermates!) Sally and Shirley of Shadowland, February 2016

    Shadowland is in very good paws with those girls! We feel so lucky to be part of the extended Shadowland family, thanks to you. Karen and Craig adored you; I’m so grateful that they shared you with me.

    Right after you died, I worried a lot about where you might be and if you were okay there. It tore up my heart to think about you being somewhere unfamiliar, not sure what to do, lonely, waiting for me, and wondering why I didn’t come. On bad days, I felt so guilty, angry, helpless, and sad that I looked forward to the “good” days when just the sadness, on its own, felt tolerable. A year later, I think I’ve finally come to believe that wherever you are, you’re safe and content, and comfortable enough to roll belly-up when you’re dreaming. Now, I’m just hoping I get to be with you again someday, there, wherever there is. I know you’ll wait for me.

    IMG_5083

    It’s been a very warm March week, the kind of days you would have liked to spending lying on the deck, baking in the sun. Even before it registered that this anniversary was approaching so quickly, I’d found myself thinking about how much you loved to do that and wishing you were here to enjoy this weather. Making you happy was not only a delight, but a point of pride! I hadn’t grasped that facet of love so thoroughly until I loved you; you probably understood it all along.

    IMG_4728

    So, wherever you are, know that I’m thinking about you, which is kind of like petting you with my mind. Thank you for being my best friend. I promise that I’m okay and I’m ready to love another dog full-time, just as soon as I’m allowed to bring one home! I’m so proud of you for overcoming your fear of cutlery and for becoming the Dog of the House after Maggie was gone. You did a great job looking after Mom and Dad. Please say ‘hi’ to Maggie for me. You’re a good, good girl. I love you, Dix.

    Always,

    Your Girl, Emily

  • Little Miss Transient

    On Friday morning, I put on my sunglasses, some old flip flops, and a bra and walked down the block for a coffee and a stack of amNYs left over after the morning commute.

    I wonder what patrons finishing their breakfasts outside the diner thought when I pulled ten copies of the free tabloid daily out of the box on the corner. “Look at that hobo. Is she going to make a bed out of those newspapers? She’s hurtin’ for a new pair of shoes. Oh, but she’s had a pedicure! And a manicure! And is she drinking a large non-fat iced latte with a shot of cinnamon?”

    She was, indeed.

    I deserved that latte, too; I had to spend the rest of the day lining boxes with those newspapers and wrapping my more fragile belongings in them.  Packing is hard.  I chipped a nail!

  • What I’m wearing to . . .

    I’m going to a wedding in October, the first in my adult life for which I’ll have full creative control over my wardrobe.  So, even though everyone will be looking at the bride, as well they should, I’m putting a lot of thought into my ensemble.  This is what I’ve come up with.

    wearing_octoberwedding

    I bought this dress on the whimsiest of whims last winter. I found it on the wrong rack—a petite size far from the petite section—and it was marked down so far that I knew it was the last one of its kind.  But, it was a size up from what I normally wear and the petite size conversion rule turned out to be true!  At the three-way mirror in the fitting room, I had to use a clothes hanger to fend off a few admirers who would have stripped the garment from my body for themselves.  I escaped with the dress and I’m so excited to finally wear it!  Maggy London’s Fall 2009 collection is online here.

    Can a girl go wrong with Tiffany?  Of course not.  I don’t think the silver beads get enough play.  They’re darling; the fine metal equivalent of pearls.  The bracelet was a gift in high school; the earrings were a little gift to myself after I got my second job.

    I detest heels.  Really.  Partly on principle, but mostly because they hurt me.  But my Maid of Honor dress at Jill’s wedding in July was tea length, and I couldn’t get away with silver Birkenstocks in the church anyway, so I picked out this pair of sandals from Naturalizer’s N5 Comfort Elements collection.  These heels are amaaaaazing.  I made it down the aisle and back and through a night of dancing with the under-10 crowd at the wedding in these shoes, and in the morning, when I went back to the hotel to pick up Jill’s dress, I put them back on, just for kicks.  I think it was clear, when I walked into the hotel dining room that morning in a commemorative t-shirt from the 1984 Olympic games, madras shorts and silver heels, that my principles were out the window.

    Thank you, Grandmom, for outfitting me with such an extensive dress-up collection when I was a little girl.  Thank you, too, for including items that could translate from pink plastic dress-up suitcase to special occasions in my adult life!  I’ve always loved the snap that this faux leather clutch makes when it’s snapped shut.  I’ll have to resist opening and closing it throughout the wedding ceremony.

    I found this lovely violet silk flower among many effortlessly enchanting floral accessories in an Etsy shop called East End Home Arts.  I browsed the heck out of Etsy on a quest for silk flowers, and the selection in Suzy’s shop is unique, feminine, and affordable.  Her customer service is fantastic, too.  I my first order with her (for one of these peach cosmos) on the night before she gave birth to her first baby, and the new mom still managed to deliver within a week.  She told me that custom orders are her favorites to work on, so if you’re in the “flowers in your hair” mood, get in touch with her.  And if you’re not in the “flowers in your hair” mood, please take a good hard look at yourself and get back to me when you’ve sorted yourself out.

    I’m ready to get dressed for this wedding now.  Where is my pink plastic dress-up suitcase?

  • “We stop existing and start living.”

    So, Michael Jackson died.

    Say what?

    I know, right?

    That was my reaction, too, when I got home from work last night and flipped on NY1 to see crowds of people gathering not in Azadi Square in Tehran, but outside Ronald Reagan UCLA Medical Center. I descended on to the futon and sat there staring at the TV and wearing my doubleyoo-tee-eff face—the one I use to bait instant assistance in hardware stores and auto service stations.  One eyebrow up, one eyebrow down, nose wrinkled a little bit, mouth quirked up on one side and mouth dropped open (the degree of openness depends on the extent of my confusion).

    Like Michael himself, my grieving process was unconventional.  In lieu of anger, bargaining, and depression, my emotions hopped from yeah right to uhhh, for serious? to this is super freaking weird and then I had to call my dad and ask him why so many bad things are happening in the world.


    My Cool Aunt gave me Dangerous on cassette tape for Christmas when I was eight years old and I lllllloved it. I just listened to iTunes’ 30 second preview of each song and I recognize only five: Heal The World, Black or White, Who Is It, Give In To Me (sort of?), and Will You Be There. Those are tracks 7-11, and from that I deduce that Black or White and Will You Be There were my favorite songs, and I learned to like the ones in between them (and the one right before Black or White because I had to hear some of it every time I rewound my tape to play through again—and again and again, for weeks straight).

    It was the first mainstream album that ever captured me (previous fixations included the soundtrack to The Little Mermaid and the greatest hits of Sharon, Lois, and Bram). It’s hard to understand retrospectively exactly what it was, but there was something about the music—and to a lesser extent, the lyrics—that I really felt. It sounded beautiful and interesting and emphatic in a way that I hadn’t yet realized music could sound. (more…)

  • What my mama gave me (besides the straight eyelashes)

    Earlier this month, my mom and I went to a bridal shower together. We were one of several pairs of Mother & Daughter, but it was the first time I’ve ever attended an event with my mother and not felt like she was only present because I was or the other way around. She wasn’t there to be my chaperone. I wasn’t there because she didn’t have time to drop me off at home first. We received two separate invitations at our two separate homes and brought two separate gifts accompanied by two separate poems (the poems were Mom’s idea).

    I’ve heard my mother called by her own name by other adults my whole life, but it totally threw me off to hear us introduced as “Emily” and “Elizabeth” and not “Emily and Elizabeth” or “Elizabeth and Emily.” The other guests kept talking to us like we were two separate entities, two separate people. Was it not clear that we were together? Maybe I should have pointed out that we arrived in the same car.

    It was a bridal shower game that outed us as “Emily and Elizabeth,” unmistakably Mother and Daughter. Each guest dumped out her purse and tallied up its contents according to a list that gave a score for each item. Stamps, pens, mints, pain killers, lipstick, sunglasses, the keys to someone else’s house, and the like were all worth 5-25 points to the person hauling them around.

    After taking inventory, we started scoring with a show of hands: “Who has 10 points? Who has 20? 30?” Hands started to drop as the total climbed past 70 points. Only four or five women had 100 points-worth of stuff in their bags. The last three standing were the bride’s grandmother, my mom, and me.

    “Who has 130?” Grandmother-of-the-Bride lowered her fingers. A knowing groan rolled through the room as my mom and I stared each other down.

    “Anybody have more than 140 points?” Mom couldn’t hack it. She dropped her arm as I raised my other one in victory, waving my winning item like a trophy.

    My eyelash curler was worth 50 points and it was the only one at the party.

    “You carry that with you everywhere?” Not even my own mother could believe it.

    When we got in the car to go home—together!—my mom said, “I don’t know why I bothered to dump out my whole purse. I knew exactly what was in there.” I think I could have guessed the contents of my mother’s bag, myself. That’s where I get all my stamps.

  • (I can’t get no)

    My theory is, the same way my body craves proteins and vitamins when they’re lacking, I get cravings when there is an emotional or intellectual deficiency of some kind. I go through phases of fixation on one particular element of my life.

    Material cravings have me browsing online and mail order catalogs like it’s my job.  Next, I’ll spend every free moment working out or planning a workout, my refrigerator is stocked with fresh, lean organics, and I get my hair cut and revamp my skincare regime.  Then I’ll read three books in two weeks and entertain the notion of going back to school for an advanced degree.  And when that passes, I sprout social butterfly wings and make a point to catch up with everyone I know before retreating into a domestic phase.  That usually involves a comprehensive scrub-down of the entire apartment and the rearrangement of furniture and decorative accessories.

    Sometimes it leads to attempts at creating decorative accessories myself.  That’s a warning sign for a creative spell.  The creativity cravings are the most difficult to satisfy.  It’s like craving something, but not knowing what it is.  Because what I want, what I crave, is somewhere within me, unseen, and if it gets stuck, simply wanting it to emerge isn’t enough to make it happen.  Sometimes I feel just desperate to conceive something of words or colors and when I can’t draw it out, it’s like I’m imploding and exploding at the same time.

    What’s unsettling is, lately, I haven’t craved much of anything.  It’s like I’m caught in the trough of a wave, just riding it out.  It’s odd, though, this absence of want.  It’s like a deficiency of deficiencies, but that doesn’t mean I’m thoroughly satisfied.

    {P.S. What are you non-gastronomical cravings? Material? Physical? Intellectual?  Social? Domestic? Creative? Or otherwise?}

  • Humming “All Things Bright and Beautiful” all the while

    Part I We humans call that ‘perverted’

    Part II

    My high school Biology teacher had a repertoire of anecdotes, and it was clear which were his favorites.  There is one story he told half a dozen times throughout the year, whenever the situation called, ever so faintly, for a yarn about the dissection of common household pets.

    Back when he himself was a Biology student, his own teacher told the students (all boys) on the first day of class that they’d spend the whole year preparing for one a major dissection lab assignment, the culmination of their high school science education.  On a deeper level, it would represent a coming of age, for each student would be asked to supply his own specimen.  “Gentleman,” the teacher said, “go out and procure yourself a cat.”

    In a way, that is exactly what I did.

    On the day after the Mus walked in on me in the bathroom, I went out and procured myself a mouse trap.

    I hoped it wouldn’t come to that.  I resisted the idea as I crouched on the bathroom floor, still wrapped in just my towel, head cocked to peer after the flashlight beam I shined under the sink.  I resisted the idea when the dust layered there distracted me.  I resisted the idea as I collected the vacuum cleaner and assembled the hose extension.  A mouse trap was the farthest thing from my mind as I jabbed the power switch and aimed the hose.

    But then, that slim furry body shot out from the corner under the sink, veered halfway under the toilet, and darted under the radiator, hovering just beyond the end of my vacuum hose the whole way.  I wasn’t aiming for it, I swear.

    Caitlin said the pitch created when my shriek combined with the moan of the vacuum probably scared the mouse to death, but I made up my mind right then.

    I selected my weapon the way I choose everything else: I shopped online.  Home Depot offered some intriguing options.  Poisons and traditional, Tom & Jerry style mouse traps, as well as contraptions called Havahart traps were all possibilities, but to be honest, I was less concerned about the humanity of the demise than I was about my own sanity.  I did not want to face this creature again, dead or alive.

    So that left the mouse trap supreme, the Boss Level equivalent of small rodent extermination, the well reviewed Victor Electronic Mouse Trap, Model No. M252.  Powered by four AA batteries, this baby is equipped with two metal plates that deliver a 4500 volt shock when the electric circuit is closed.  It also features a status light that blinks when an intruder has been apprehended and a hinged lid that flips open for quick disposal.

    I spent $19.99 on this mouse trap.  Plus tax.

    And I bought batteries, too.

    At home, I poured a glass of wine and spread a dab of peanut butter on a Cheerio.  The wine was for me, the peanut butter was for my little friend.  I set the trap near the bathroom radiator, where my target was last sighted.  One review on Home Depot’s website reported results within the hour.  I put my feet up while I waited.

    Twelve hours later, I woke to a blinking light.  Three hours, two phone calls to my parents, and a cup of coffee later, I stood over a tall garbage can wearing boots, long, green rubber gloves and my coat, with my house keys in the pocket.  I squeezed my eyes shut and hummed at the top of my lungs as I picked up the little black box, loosened the top, and turned it over above the garbage.  I was singing so loudly that I couldn’t hear anything land in the trash bag, so I gave the trap a vigorous shake, just to be sure.  Without breathing, I tied up the bag and Baywatch-ran (you know, high knees?) down to the curb to dump the body.

    I mean, to dispose of the evidence.

    I mean, to take out the trash.

    That night, my roommate and her boyfriend and I made dinner together.  They got back to the building with groceries before I got home from the liquor store, and Caitlin had forgotten her keys, so they went to ask our super for the spare set.  The super opened her door and before Caitlin could say a word, said, “I know just what you’re looking for, you don’t even have to say it!” and handed Caitlin a shrink-wrapped package.  Bewildered, Caitlin wondered, what do you think I’m here for? and looked down at the rat poison in her hands.

    Apparently, other tenants have noticed the mice, too.

    “Actually, we’re just looking for your spare keys,” Caitlin said.  “But yeah, how ’bout those mice?  You know, just yesterday, Em went out and bought herself a trap, and she caught something this morning!”  Like, next I might go out and catch myself an urban squirrel.  And then I’ll go after a park raccoon.  And next thing you know, we’ll have a wall covered in stuffed game heads.

    Unlikely.

    I set the mouse trap again that night, but it was empty in the morning.  I did have one more sighting.  I was sitting in the dimly lit kitchen a few evenings later when a mouse came out from a tiny gap in the baseboards.  It stopped short in the middle of the floor, rose up on its hind legs and leaned toward me, and then scampered under the oven, apparently uninterested.  It was as if it said, “Oh, it’s just you.  I didn’t recognize you with your clothes on.”

    I moved the trap into the kitchen that night and the mouse had the nerve not to be caught dead in it.  That’s the last I’ve seen of them.  I can only assume the rest have all been poisoned by my neighbors.

    I really hoped to eliminate more than one mouse in my $20 trap, even if only to reduce its cost per use.  With every catch, I could have cut the life cycle expense in half.  But for now, that one mouse rings up at $20, and I guess that’s not a bad thing.

    Now that I think about it, I never did find out for sure if that cat dissection story was true.

  • We humans call that ‘perverted’

    Part I

    I thought I had come to terms with the undeniable fact that mice, rodents, live among us in the city.  I could accept their mostly invisible presence in my kitchen.  Even when they made their presence known—once I caught one scurrying across the counter and down into the stove; another time I came home to find a sink full of dishes and two tiny ones hiding among them—I got over it . . . by scooping them up in the colander and dumping them out the window.

    Though I knew they were there, around, somewhere, as long as their existence was no more than conjuncture, if I never gave too much thought to the transient wisps with tails ghosting through the walls, it was fine.

    The Mus musculus, commonly known as the house mouse, lives in close association with humans, and its survival depends on that association. Bodies range in length from 65 to 95 mm, not including the tail, which is from 60 to 105 mm long.  Weight is between 12 and 30 g.  Not a very intimidating size, is it?  Compared to their strictly rural cousins, house mice tend to have longer tails and darker fur.

    Apparently, they are also equipped with bigger gonads.

    That’s just what I need.  Gutsy mice.  Mice with stones.  Mice with reckless courage.  Mice that breach the lines of neutral territory and come down the hall to the bathroom.  Mice that enter without knocking first.

    I was putting up my hair, about to get in the shower, and only happened to have my gaze directed at the floor, when I saw it shoot under the door, round a quick corner and go under the sink cabinet.  It was so small.  It seemed to move without touching the floor.  I would have mistaken it for a dense gray dust bunny if its body hadn’t had such marked forward thrust.  Clearly, it had places to go, and my towel, which I’d dropped to the floor, blocked its path between the doorway and the heating vent.

    My yell began as a groan, a sound of dissenting horror.  I snatched up my towel and clutched it to my chest, only to wonder if I shouldn’t burn it—how close did those little feet come to it?  But by then, I’d thrown the bathroom door open and my roommate had come running down the hall.  We both stood in the doorway while I professed my absolute certainty that I’d seen a mouse and not a hairball and she tried to persuade me that whatever I’d seen was already long gone, and I reasoned that to get long gone, it must have had feet.

    When I finally reached into the shower to turn off the water, which I’d already had running, we both heard the scratching of paws from under the sink.  She cracked up and I whined one long, wordless note of misery.

    I detest being such a girl about it.  It’s not like I’ve never encountered a mouse before.  We had them in my house when I was a kid.  One summer at camp, I named the mice we saw darting into dark corners of the cabin.  I called them Stuart, Stuart, Stuart, and Little, and I hoped my campers would accept that woodland creatures roam the woods, or at least be more comfortable with their harmless little cabin mates.  Maybe the mice got too comfortable, though.  I was reading on the couch one night when one of the Stuarts crept toward me across the top of the back cushions, trying to get close enough to read over my shoulder.

    A curious mouse in a cabin in the woods in the middle of the night is one thing, but Speedy Gonzalez had the pluck to interrupt the dinner hour. He entered an inhabited room under a closed door.  He saw me naked.

    And he’ll pay for the privilege.  With his life.

    Part II—Humming “All Things Bright and Beautiful” all the while